TEEN TOPICS – WEEK 81: Where is the line between living WITH T1D or letting it consume/control you?

Annelies (age 15)
I believe that you have crossed the line between living with diabetes and letting it control you is when you don’t live your life because of diabetes. Although I’m constantly aware of it, I’m still a teenager and I still like to have fun and go out with my friends. I don’t let it control me or hold me back from living my life, and if it does hold you back, then you have let diabetes control you.

Andrew (age 15)
The line between living with T1D and letting it control you is when you decide to not take care of your diabetes. Once you stop caring for yourself you feel sick, angry, and tired. Those side effects take a toll on your body and can lead to diabetes controlling everything you do and how you feel.

Cameron (age 18)
You can’t let diabetes define who you are or limit what you do. It’s just something that we have to deal with, but we can still do whatever we want to do. Once someone starts letting diabetes control what they can and can’t do, that’s when it starts controlling you.

Caroline (age 15)
Living with T1D is having to deal with the everyday stipulations of not having a functioning pancreas. This does pose problems for everyday life, as all diabetics know. But letting T1D control you would be if you’re telling yourself you can’t do things because you have T1D. That’s not true at all. T1D or no T1D, you can do whatever you put your mind to.

Christina (age 15)
The line is drawn when your T1D care always comes before your desires. For example, I really shouldn’t eat pizza, pancakes, or French fries because they are hard for me to bolus for, but everyone once in a while it is okay to treat yourself to these foods because you have to enjoy life. Another example is to not let your diabetes stop you from doing the activities you love. If you really love to run, you will find a way to make it work with your diabetes. In my experience, living with T1D is learning to be flexible in order to do the things you love and not letting your diabetes make you a rigid person who is scared to make any sudden moves.

Claire (age 18)
Diabetes, in my opinion, should never EVER consume your life our fully control you, because even though you may have superb diabetes care, that’s when you’ve lost.

Erin (age 18)
Gosh that is a hard question. Obviously, it varies for each person and some people in my life associate me being diabetic over the other of being a person with diabetes. I’m not exactly sure how to answer this question.

Haley (age 14)
To some degree, I feel like there’s no way around letting Diabetes control me. But, I think by making decisions based on what I would want to do whether or not I have t1d, and then figuring out how to handle my diabetes while I’m doing whatever it is, I’m not letting it have total control over me.

Ian (age 15)
The line is as follows: if at any time you plan events around your diabetes (such as gatherings or parties), or associate with people solely because of their disease, then it controls you. You have diabetes when you just deal with the disease, not embrace it.

Jon (age 16)
As long as I am staying on top of my diabetes and doing all I need to do everyday type 1 can just be a part of my life that’s with me each day.  It’s always there but it’s like on the sidelines not my main focus.  I stay in control of it as best as I can.

Jordan (age 19)
If you let it stop you from doing anything, then you are letting your diabetes control you, so do everything.  My parents said from the beginning, when I was 9, that I could do anything I wanted to.  No matter how challenging, we’d find a way to make it work.  I played basketball and volleyball in high school.  I snowboard.  And my favorite thing to do is to scuba dive.  At first people told us that I couldn’t get certified because of my diabetes, but my mom went online and found a way to make it happen.  I definitely don’t let my diabetes control me!

Julia (age 15)
I’ve never really let diabetes control or consume me and I think a major reason for that is my parents never really let it consume me.

Laura (age 18)
There is a fine line, and sometimes I think I cross it and I sink into my self-pity. I don’t mean to. I guess the line would be taking care of yourself and not letting it define you, or hold you back to your dreams and aspirations. It’s just hard to stay on the positive side sometimes.

Lexi (age 16)
I feel like letting it control and consume you can cause some negative effects towards you emotionally. That’s why you have to push yourself and make sure you’re healthy and awesome.

Maggie (age 17)
The line is pretty big actually. T1D isn’t your whole life it’s just a part of it. If you let it control you it becomes you being obsessed with it and letting it affect everything you do. I just live my life like a normal kid but I just take breaks to take care of myself.

McKenna (age 16)
I don’t let it consume me or control me because it’s a part of me and at some point it has to become a part of your everyday life. You can’t sit around and dwell about it happening, you have to live with it and have it be a part of everything. You can’t have diabetes hold you back from good experiences.

Skylyn (age 17)
I think a line would need to be drawn between living with T1 and letting it consume you when you are not letting yourself do certain things or eat certain foods because of your diabetes. For example, not allowing yourself to have a sugary dessert because it will make your blood sugar go high. Just remember to give more insulin for it. If you’re unsure on how many carbs it is, look it up on your phone quick, get a rough estimate and see how it works, monitoring it. Never let diabetes stop you from doing what you want to do.

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