Jordan (age 18)
My mom has OCD and neatly stacks my diabetes supplies so that’s pretty nice.
Julia (age 15)
My parents clean out my kit for me a lot because I forget and that’s super helpful. My mom also usually remembers what day I need to change my site so I don’t run out of insulin.
Laura (age 17)
I get really annoyed easily when it comes to managing my diabetes so when my parents really try to help it makes me frustrated. I think the best thing that my parents can do that is helpful and stand back and trust that I will be able to take care of myself without their supervision.
Lexi (age 16)
My mom texts me when I should test my blood sugar and I set reminders. Sometimes I forget to do it when I’m busy or distracted.
Jessica (age 20)
The most helpful thing my parents do is listen and help only when I ask. I am not a fan of people jumping in, taking control, and telling me what to do. I have always loved to be independent, and I think this is an important quality for all diabetics to have. One day we are going to be adults and on our own, therefore we must learn how to take care of ourselves, by ourselves. As I have gotten older, very occasional reminders to do something or did I do something are helpful, but when they begin to be too cumbersome or “what was your number” that is when I get annoyed and frustrated. I know how to ask for help and reminders when I need them, and I most definitely know how to take care of my blood sugars. When my parents understand that I am capable and if I need something/have an issue that I will come to them, life becomes so much easier and less stressful.
Maggie (age 16)
I find that my Dexcom and my mom texting me emojis when I’m low or high is helpful but the all the time signal losses not so much. Also I find my dad basing meals off of carbs a lot easier for me to calculate and not forget to bolus.
Skylyn (age 16)
Something my mom does that is helpful is she double checks everything before doing a set change. Like she makes sure all the parts fit together properly and work properly. This helps minimize problems such as blocked tubing.
Vanessa (age 16)
My mom has always come into my room in the mornings and checked if I was sleeping in, and if my blood sugar was high she would also give me a shot so that when I finally wake up I don’t feel sick from a high blood sugar. And of course if it’s low she wakes me up and has me drink a juice or eat something. But that’s just a little bit of what she does, if I had to tell you all that she did for me I would be talking for hours.
Haley (age 14)
They always do my early morning Lantus dose and I don’t have to wake up for it. My Mom always gets me cases for my daily supplies that are cute and easy to carry around. They’re always trying to find ways to help make things easier for me.
Maddy (age 14)
Something my parents and I find helpful is creating meal plans with carb counts so we can eat healthy and also plan ahead for me so I don’t have to scramble as much before eating figuring out carbs.
McKenna (age 16)
I find it very helpful when my parents don’t hover over me with checking my blood sugar or giving insulin. I also find it helpful when they’re understanding with the small problems I have with diabetes and when my mom is on top of ordering supplies when I’m running low.
Christina (age 15)
Both of my parents will gladly put my infusion set in when it seems like an impossible, scary task. Also, they will listen to my occasional rant about the unfairness of diabetes when my blood sugar is high or a low stops me from jogging.
Annelies (age 15)
Some things that my parents do that are helpful are reminding me to test, and helping me with carb counting. But most importantly, they’re always there as a support system and understand that I’m human, and I might forget things sometimes. They also understand that I’m still technically a kid and I want to be able to do fun things and they’ll help me figure out what to do with my devices and blood sugar.
Andrew (age 15)
My parents do a great job of communicating with my teachers and other adults in my community about my diabetes and how to help me manage my diabetes. Personally I’m very independent in my diabetes care and as a result I have an extreme dislike of adults constantly checking in on me and my numbers, whether or not I’ve bloused, etc. My parents do a great job of preemptively telling my teachers and other adults they run into about my dislike of their protective behavior and as a result I don’t have to tell them myself.
Ashley B. (age 16)
I find it helpful when I’m calculating how much insulin I need for a meal and they help me by looking up the carbs.
Ashley C. (age 14)
She refills my diabetes bag as needed keeps my supplies organized, and she allows me and my endo to make my own plan.
Cameron (age 17)
Keeping my CGM in their room at nighttime so they can wake up to the alarm and I can sleep.
Claire (age 18)
They remind me to dose and do blood checks pretty often. But since I just turned 18 and am about to move into a college dorm, they’re sort of taking a step back and letting me fend for myself.
Erin (age 17)
I mostly do everything myself, and if I could do endo appts myself I would, but tried to once and they canceled it. Since I do everything myself, my parents just listen if I get frustrated, or with a lot this past school year call in because you have to be over 18 to call yourself out of high school. So I guess it would be being supportive and listening.
Ian (age 14)
My parents are willing to get up in the middle of the night to give me a correction for my blood sugar. The CGM doesn’t wake me up. But they wake up and help me. I love that.